Thursday, September 8, 2011

July 2011 Family Gathering

We had a great time in Orem at the Community Park. There was a playground close by for the kids and the large shaded pavilion helped ease the heat.

We had pizza, watermelon, drinks along with good conversation and great parenting ideas.

One of the great ideas shared was for those FXers who don't like just water because it doesn't have enough pizazz, just add MiO. I found it at my local Smith's store for a couple of dollars. It lasts a long time and gives a punch of flavor.

Another great idea was about brushing. One mom found that a cat brush that your find at the pet store works great and is inexpensive. If you don't know what brushing is check here.

We also had brand new members join us at the picnic. 
It was so great to meet some new people! Woo hoo!

It was so wonderful to have a gathering of parents, children affected by FXS and children not affected by FXS, and carriers of FXS. I am excited for our next event.

Maybe a fundraiser?


Thursday, March 24, 2011

Advocacy Day 2011

The FXAU was represented well in Washington this year with 4 people from our group. We sent two mothers, one father and one grandfather.

Here are a few pictures of their experience.

We hope to get more of you involved next year. It is an awesome experience and very rewarding!

If you are interested please leave a comment or send me and email.

Article in the Local Newspaper

Check out this family from Utah County!

Utah Family Makes Cover of the National Fragile X Quarterly

Exciting to have Utah representing families of Fragile X Syndrome

Click here if you would like to receive The National Fragile X Foundation Quarterly.