tag:blogger.com,1999:blog-75923978402655272232024-03-05T02:20:24.896-08:00Fragile X Association of UtahUnknownnoreply@blogger.comBlogger14125tag:blogger.com,1999:blog-7592397840265527223.post-15726898937845411612015-05-05T12:27:00.003-07:002015-05-05T12:27:37.919-07:00Let 'em Know 5K<div class="MsoNormal" style="color: #222222; font-family: 'Times New Roman', serif; font-size: 12pt; margin: 0in 0in 0.0001pt;">
<span style="font-family: Calibri, sans-serif; font-size: 11pt;">Hello!<u></u><u></u></span></div>
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<span style="font-family: Calibri, sans-serif; font-size: 11pt;">Our UTAH Community Support Network group is getting ready for the NFXF Let ‘Em Know virtual 5K. Awareness month is just around the corner and we need to get ready. Whether you are an experienced fundraiser or a novice, this is the easiest fundraising you will ever do. You set up a page and then send the link to your family and friends asking they support you in your fundraising efforts. There is the opportunity to personalize your page with a family photo and share your Fragile X story. The funds raised through NFXF’s Let ‘Em Know 5k Virtual Event supports the mission of the Foundation and therefore directly benefits all individuals and families living with Fragile X both locally within our group and nationally.<u></u><u></u></span></div>
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<span style="font-family: Calibri, sans-serif; font-size: 11pt;">Attached are instructions for setting up your own fundraising page under our Utah Community Support Network Team page. We have set a goal of $10,000 as a group. Please send the link to your fundraising page to your personal network or family and friends, whether they know about Fragile X or not. This is your opportunity to not only help raise funds but also to create Fragile X awareness on a larger scale to those who may never come into contact with it. <u></u><u></u></span></div>
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<span style="font-family: Calibri, sans-serif; font-size: 11pt;">We will be sending out Awareness Facts and other Fragile X messaging throughout July and will be sure to forward it along so you can share this information with your family and friends.<u></u><u></u></span></div>
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<span style="font-family: Calibri, sans-serif; font-size: 11pt;">Directions: Follow the link below to our page and then hit JOIN this event. You will then have 2 options: START your fundraising page or REGISTER for this event. In order to get a LEK15 t-shirt and race bib you must hit REGISTER. From this page you will be able to both order your t-shirt and set up your fundraising page. If you do not wish to register for a t-shirt you can hit JOIN and that will take you directly to the page where you will set up your personal fundraising page. The instructions attached will also give detailed step by step instructions should you need more information.<u></u><u></u></span></div>
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<b><span style="color: #0070c0; font-family: Calibri, sans-serif; font-size: 11pt;"><a href="https://www.crowdrise.com/fxaulek15" style="color: #1155cc;" target="_blank"><span style="color: #0070c0;">https://www.crowdrise.com/<wbr></wbr>fxaulek15</span></a><u></u><u></u></span></b></div>
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<span style="font-family: Calibri, sans-serif; font-size: 11pt;">Thank you for helping make a difference!</span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5dv_1zf4VvTePJzu9PBn_WSXoTM7ohebUpahyphenhyphenrlzi9zkXHTVLSVXFIQdQPKdWkmTvtPcj_-T5-lkecemo8OFKzxs__H0hoDDnkTbMTBKy6S2D3bjZtrFM4Av4_QwwymQtVgcw1CkZvTG2/s1600/DSC_4922.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5dv_1zf4VvTePJzu9PBn_WSXoTM7ohebUpahyphenhyphenrlzi9zkXHTVLSVXFIQdQPKdWkmTvtPcj_-T5-lkecemo8OFKzxs__H0hoDDnkTbMTBKy6S2D3bjZtrFM4Av4_QwwymQtVgcw1CkZvTG2/s1600/DSC_4922.jpg" height="640" width="450" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">My Baby who has Fragile X enjoying the scope at the nearby park</td></tr>
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Marc and Rachaelhttp://www.blogger.com/profile/09440340913544948948noreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-52305407282242889132015-04-16T14:47:00.004-07:002015-04-16T15:35:02.477-07:00We're Gonna Be in a Parade!Hey!<br />
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Do you love parades?<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvuE5COGdPP2dPdsfVSncv0kcRns9k2RH5vHPBsWosKB9Qwtm49yHgwZ5k7VAyZkVXLTPlBhWAthj_9EFvaTKsb7gmkrcsUIyYzNX5WaHwCxuecgmnpql0v3dzHn-yzN9QVekeTIuCiA7k/s1600/Orem+Parade+6.11.11+042.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvuE5COGdPP2dPdsfVSncv0kcRns9k2RH5vHPBsWosKB9Qwtm49yHgwZ5k7VAyZkVXLTPlBhWAthj_9EFvaTKsb7gmkrcsUIyYzNX5WaHwCxuecgmnpql0v3dzHn-yzN9QVekeTIuCiA7k/s1600/Orem+Parade+6.11.11+042.jpg" height="300" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><i><span style="font-size: xx-small;"> Picture used from the Miss Orem and Teen blog site</span></i></td></tr>
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Do you love advocating?<br />
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Do you have someone in your life affected by Fragile X Syndrome?<br />
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The FXAU is going to have a float in the <a href="http://summerfest.orem.org/">Orem City's Summer Fest Parade</a> on Saturday June 13th 2015!<br />
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We are so excited to bringing awareness in a fun way and to be advertising for our 4th Annual FXAU Parade of Pumpkins in October this year! (Which, by the way, will be held at the Scout Office Building in Orem just off the 800 North Freeway Entrance/Exit)<br />
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Leave a comment or send and <a href="mailto:centralut@fragilex.org">email</a> if you are interested in helping in the parade.Marc and Rachaelhttp://www.blogger.com/profile/09440340913544948948noreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-79021292882107545212013-09-02T20:53:00.003-07:002013-09-02T20:53:59.060-07:00Coming Back to Life!<div class="separator" style="clear: both; text-align: center;">
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This is the "cheese" smile!</div>
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Yes, I am trying my best to revitalize our sweet FXAU! I take breaks every so often, I guess, but I will be better at trying to get this updated more often.<br />
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We have an opportunity on September 6th to hear from author LeeAnn Taylor.<br />
<br style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;" /><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;">LeeAnn Taylor </span><a href="http://www.amazon.com/.../dp/1939447151/ref=sr_1_1" rel="nofollow nofollow" style="background-color: white; color: #3b5998; cursor: pointer; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left; text-decoration: none;" target="_blank">http://www.amazon.com/.../dp/<wbr></wbr><span class="word_break" style="display: inline-block;"></span>1939447151/ref=sr_1_1</a><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;">...</span><br style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;" /><br style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;" /><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;">The Fragile Face of God: A True Story About Light, Darkness, and the Hope Beyond the Veil</span><br style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;" /><a href="http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.amazon.com&h=SAQGxkUEsAQG2Xw-SdmT7ZYD8FMJ4Wcs6we6jKIqfvrvI2Q&s=1" rel="nofollow nofollow" style="background-color: white; color: #3b5998; cursor: pointer; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left; text-decoration: none;" target="_blank">www.amazon.com</a><br style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;" /><br style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;" /><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;">Can our darkest hour give rise to miracles? Can departed loved ones intervene on our behalf? And can the most fragile among us light the way? In this heart-rending true account, LeeAnn Taylor opens with an urgent prayer for death. With unrelenting honesty, she describes her harrowing battles raising three children with Fragile X syndrome and autism, the frightening episodes with her disabled sons, and the anguish of mothering these fragile children. When her ordeal escalates, she turns to death as her only escape.</span><br style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;" /><br style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;" /><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 17px; text-align: left;">"I (LeeAnn Taylor) will be in Salt Lake area and would like to put together a book club discussion for my new book (above), or a small gathering where I can share my story. I will bring free copies! I am looking for opportunities to share my story and my book. I would love to connect our sweet families/mommies/daddies in the FX communities across US."</span><div>
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ALSO!!</div>
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Don't forget the Parade of Pumpkins is coming up this October and I'm excited to have our second annual Caregivers Dinner.</div>
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Details to follow soon on these activities.</div>
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And I hope the picture above made you smile! I know it does it for me!</div>
Marc and Rachaelhttp://www.blogger.com/profile/09440340913544948948noreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-28192008645492712362012-05-25T16:11:00.003-07:002012-05-25T16:14:08.351-07:00We can always change our mind...So, it has been decided that our benefit will no longer be the motorcycle ride that has been long anticipated. It just wasn't panning out, and frankly, it wasn't something I had a true interest in so we are looking at October for our Parade of Pumpkins.<br />
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You can donate to our cause at <a href="http://www.firstgiving.com/fundraiser/rachaelgibson/rachaelgibsonsfundraisingpage">FirstGiving</a> </div>
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or</div>
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you can like us and check our <a href="http://www.facebook.com/UtahFXParadeOfPumpkins">Facebook Page</a></div>
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It's going to be a fun-filled weekend of pumpkins, face painting and prizes.<br />
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Think of it kind of like the Festival of Trees only done with Pumpkins at Halloween time...<br />
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<span style="font-family: Verdana, sans-serif; font-size: large;">October</span><br />
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<span style="font-family: Verdana, sans-serif; font-size: large;">at Noah's in Lindon</span></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-55849522725425357932011-09-08T19:17:00.000-07:002011-09-08T19:20:11.917-07:00July 2011 Family Gathering<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3cPEMHi_S5JBohK2byOPbsY0IlilYAZwABidVD-45KQlwn9-VuByJ7CL5tgOdQ8I6_zpoVuj3xrBxqMep8PmV-r6n8BWRSWIQ7XAwtq18uxHIsrK3vOSe8DYWBQZfamUn963MeBOnflC7/s400/PICT0099.JPG" width="400" /></div><br />
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<div class="separator" style="clear: both; text-align: center;">We had a great time in Orem at the Community Park. There was a playground close by for the kids and the large shaded pavilion helped ease the heat.</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">We had pizza, watermelon, drinks along with good conversation and great parenting ideas.</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">One of the great ideas shared was for those FXers who don't like just water because it doesn't have enough pizazz, just add MiO. I found it at my local Smith's store for a couple of dollars. It lasts a long time and gives a punch of flavor.</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">Another great idea was about brushing. One mom found that a cat brush that your find at the pet store works great and is inexpensive. If you don't know what brushing is check <a href="http://www.ehow.com/how_2090234_body-brush-autistic-child.html">here</a>.</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">We also had brand new members join us at the picnic. </div><div class="separator" style="clear: both; text-align: center;">It was so great to meet some new people! Woo hoo!</div><div class="separator" style="clear: both; text-align: center;"><br />
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It was so wonderful to have a gathering of parents, children affected by FXS and children not affected by FXS, and carriers of FXS. I am excited for our next event.<br />
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Maybe a fundraiser?<br />
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...Marc and Rachaelhttp://www.blogger.com/profile/09440340913544948948noreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-45551857840739200342011-03-24T12:53:00.000-07:002011-03-24T12:57:20.656-07:00Advocacy Day 2011<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px; border-collapse: collapse; color: #333333; font-family: 'trebuchet ms', verdana, arial, sans-serif; font-size: 13px; line-height: 18px;">The FXAU was represented well in Washington this year with 4 people from our group. We sent two mothers, one father and one grandfather.<br />
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Here are a few pictures of their experience.</span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwLG8EE3_2EjQtVvMD_P6swKEVkc0-nh0qmvbTEpbf-JE4n2FqobJpxuu7r-JnA2TK1i8UxLLtAh3nkNSTtKY2IN98xu_qS7hkvZezWPl9uqCJSskkwxgd3fLJw7Yxzse91CNYjkXbZGlX/s1600/DSCN3298.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwLG8EE3_2EjQtVvMD_P6swKEVkc0-nh0qmvbTEpbf-JE4n2FqobJpxuu7r-JnA2TK1i8UxLLtAh3nkNSTtKY2IN98xu_qS7hkvZezWPl9uqCJSskkwxgd3fLJw7Yxzse91CNYjkXbZGlX/s400/DSCN3298.JPG" width="400" /></a><br />
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We hope to get more of you involved next year. It is an awesome experience and very rewarding!<br />
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If you are interested please leave a comment or send me and email.</span>Marc and Rachaelhttp://www.blogger.com/profile/09440340913544948948noreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-71923486863610759022011-03-24T12:29:00.000-07:002011-03-24T12:29:45.763-07:00Article in the Local NewspaperCheck out <a href="http://www.heraldextra.com/news/local/north/eagle-mountain/article_3d78cbf5-7afb-51c6-a3b6-dae11b194d67.html">this</a> family from Utah County!Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-45000407623319974752011-03-24T12:27:00.000-07:002011-03-24T12:27:12.480-07:00Utah Family Makes Cover of the National Fragile X QuarterlyExciting to have Utah representing families of Fragile X Syndrome<br />
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Click <a href="http://www.fragilex.org/html/journals.htm">here</a> if you would like to receive The National Fragile X Foundation Quarterly.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJuUfaqU_OI8DfcQLTnHxtB1PvYx8Kqgocjv5d5I3PQ9Ly5cdZmY9ZCOAb0DSwAwmJHL6aJuYsFEufzbFjGTpUePfvyJxNxv4EcC9D89ScZB6Vd9h23X7KD_jdzaHGZH7jc4Ban6PPB8gR/s1600/Issue40_February2011_finalfinal_Page_01.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJuUfaqU_OI8DfcQLTnHxtB1PvYx8Kqgocjv5d5I3PQ9Ly5cdZmY9ZCOAb0DSwAwmJHL6aJuYsFEufzbFjGTpUePfvyJxNxv4EcC9D89ScZB6Vd9h23X7KD_jdzaHGZH7jc4Ban6PPB8gR/s640/Issue40_February2011_finalfinal_Page_01.jpg" width="494" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-54348453564060035322010-12-01T18:32:00.000-08:002010-12-01T18:33:51.578-08:00Ride for Fragile X<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggfkfNhOWjFfRQWpzY-g3QyL_cHFf19EA5ZpgjPF41ZLkmwYvvCJ2J5uRTDJxTqyzKuOs4KjiCXmhZTt9QoS-OS_AWJox1tIhzs1A9WEdyfSEtDbgHvV_tiGNXw_VZ85bJtJ1LmrMlsQ23/s1600/RideforFXS+Logo+idea1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="165" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggfkfNhOWjFfRQWpzY-g3QyL_cHFf19EA5ZpgjPF41ZLkmwYvvCJ2J5uRTDJxTqyzKuOs4KjiCXmhZTt9QoS-OS_AWJox1tIhzs1A9WEdyfSEtDbgHvV_tiGNXw_VZ85bJtJ1LmrMlsQ23/s400/RideforFXS+Logo+idea1.jpg" width="400" /></a></div><div style="text-align: center;"><br />
</div><div style="text-align: center;">This is a motorcycle benefit ride that my friends are putting on. </div><div style="text-align: center;">I will put up more information for dates and such as I receive them.</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">Check out the website where donations are being accepted </div><div style="text-align: center;">and pass this site on to all of your family and friends.</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">You will find the link to donate at <a href="http://www.tjdcustoms.com/apps/webstore/products/show/1967254">TJD Customs</a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-30280714854636378582010-09-08T23:46:00.000-07:002010-09-08T23:46:04.976-07:00Aquarium Family ActivityWe had so much fun at the activity that the Mills planned for our association in August! We went to the aquarium and gathered in one of the party rooms for the first hour and a half for learning and socializing, and, of course, eating! Mmm! Then we all went on a treasure hunt around the aquarium and then we got to have our free time to look at everything.<br />
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It was great to meet 2 new families who have just received or are awaiting diagnosis. We had a good turnout (we would still like to see more of you).<br />
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I didn't get too many pictures without my kids in there so I found some of a few of the many things we saw at the aquarium.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFfWH7XARbvAGAlvFJ9n1NZMpwDMy3iBrLmUkZL3SxCe3H9pR9_5R32DQc8ayTXsDyI1wsF5AP4sWTac-NI-SQajal-tskbnLFepY8x8cpQLF1vMINNjVMqWQdWQCkR1x2wV6AjWQwAKVI/s1600/PICT0046.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFfWH7XARbvAGAlvFJ9n1NZMpwDMy3iBrLmUkZL3SxCe3H9pR9_5R32DQc8ayTXsDyI1wsF5AP4sWTac-NI-SQajal-tskbnLFepY8x8cpQLF1vMINNjVMqWQdWQCkR1x2wV6AjWQwAKVI/s400/PICT0046.JPG" width="400" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRXdUliLH1zQaTflqb3vJmDEWwqqE3NEVfnVMdkugxYL6-6l6lDXpmRxLFih0I4ELIIsL5OmNeTL_hWeAk2JRUsZuUld5XUlE9MUVAq0OpkVf7KPq0lJbfbLvJ43oE04kciIEhLSS6Lwqc/s1600/PICT0049.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRXdUliLH1zQaTflqb3vJmDEWwqqE3NEVfnVMdkugxYL6-6l6lDXpmRxLFih0I4ELIIsL5OmNeTL_hWeAk2JRUsZuUld5XUlE9MUVAq0OpkVf7KPq0lJbfbLvJ43oE04kciIEhLSS6Lwqc/s400/PICT0049.JPG" width="400" /></a></div><div style="text-align: center;"> Penguins</div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3IkNzalrmsn-705P3uTC-EzQq1Ejp2ZbUr8P0V2Qh24joD6Okzs9TfonMxWowngLHY3epRWYCBsZvWzqcthMbo93K8Rek6_tJptn15zrqzHYOVuY4w5rEr4E6CJ9IxFbdYyrIN-hnlT-M/s1600/PICT0058.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3IkNzalrmsn-705P3uTC-EzQq1Ejp2ZbUr8P0V2Qh24joD6Okzs9TfonMxWowngLHY3epRWYCBsZvWzqcthMbo93K8Rek6_tJptn15zrqzHYOVuY4w5rEr4E6CJ9IxFbdYyrIN-hnlT-M/s400/PICT0058.JPG" width="400" /></a></div><div style="text-align: center;"> Fish (of course)</div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5tPDy2DaADMcATwCtbrOgdGhJtYcdt4nMw7N0BIdRvSl0VHfM8l8xZ4F894-hND-Isd_DV7OpKbP9WpqEuZ5tOdLv2osGYN5agdtpqi7p8_57Kf67zJKAh_IOkXa9feSCsTs9qGOZQ4Ii/s1600/PICT0041.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5tPDy2DaADMcATwCtbrOgdGhJtYcdt4nMw7N0BIdRvSl0VHfM8l8xZ4F894-hND-Isd_DV7OpKbP9WpqEuZ5tOdLv2osGYN5agdtpqi7p8_57Kf67zJKAh_IOkXa9feSCsTs9qGOZQ4Ii/s400/PICT0041.JPG" width="400" /></a></div><div style="text-align: center;">Poisonous frogs</div><div style="text-align: center;">(don't worry, no one got hurt while taking this picture...)</div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdKxsp5nUhmm4x4jsDCoDwhnIH9V-kJt5SDvmsSUwfrjKuwB9nsd-FtZhwDGyavBVJFT7rP0842n4iv1JImMNNrWyyMOcxNY42lAC7epLxn9gXuM5s888UHMUG18Ndu-1B4Gk7qSebkHNO/s1600/PICT0022.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdKxsp5nUhmm4x4jsDCoDwhnIH9V-kJt5SDvmsSUwfrjKuwB9nsd-FtZhwDGyavBVJFT7rP0842n4iv1JImMNNrWyyMOcxNY42lAC7epLxn9gXuM5s888UHMUG18Ndu-1B4Gk7qSebkHNO/s400/PICT0022.JPG" width="400" /></a></div><div style="text-align: center;">Yes, that's my kid but the background was so cute I thought I should show you the place for a good photo op. (smile)</div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUr535OTKLzYMTYa9TZo2g4p3XjRzN2SU0SqmUnvikOU-nQ4yjOvmdxvlF8RhvIdcaNvIhe-jMohdP7FWt3JsnTQu93wIfLkU6D1jExJj8OiMQqsf9rxNo0LrELtxCJPVRm95fzAyyDrlP/s1600/PICT0072.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUr535OTKLzYMTYa9TZo2g4p3XjRzN2SU0SqmUnvikOU-nQ4yjOvmdxvlF8RhvIdcaNvIhe-jMohdP7FWt3JsnTQu93wIfLkU6D1jExJj8OiMQqsf9rxNo0LrELtxCJPVRm95fzAyyDrlP/s400/PICT0072.JPG" width="400" /></a></div><div style="text-align: center;">We even got to go to a show and see birds, insects and a huge snake!</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjE1RVPTYpXuodHcFs1sHnInWDlezRCiB9OuKG2WCbrht5alyMf0mJw1fG5-lCgd7CRgL_OMpU17EIuuDuCGdaCc7A3dsFncu916rKMcksz1X83yULEt5lOiXt5XzBCByWKWLYq-NZ4k8Ys/s1600/PICT0073.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjE1RVPTYpXuodHcFs1sHnInWDlezRCiB9OuKG2WCbrht5alyMf0mJw1fG5-lCgd7CRgL_OMpU17EIuuDuCGdaCc7A3dsFncu916rKMcksz1X83yULEt5lOiXt5XzBCByWKWLYq-NZ4k8Ys/s400/PICT0073.JPG" width="300" /></a></div><div style="text-align: center;"><br />
</div><div style="text-align: center;">There was also an octopus, jelly fish, starfish, sting rays, sharks, a sea turtle, sea horses, and all kinds of awesome fish!</div><div style="text-align: center;"><br />
</div><br />
<i>If you have any pictures you would like to share email me or leave a comment so I can contact you and put the picture on our blog...</i>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-17369090843970894882010-07-05T07:27:00.000-07:002010-07-05T07:27:08.146-07:00Utah family makes front page of Daily Herald!Check out this article on the Beck Family!<br />
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<a href="http://heraldextra.com/news/local/article_04117818-ec18-581f-97a6-32a46046bd4b.html?mode=story">Alpine Family Faces Unique Challenges</a>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-7592397840265527223.post-14574076967352337872010-06-14T22:33:00.000-07:002010-06-14T22:39:18.161-07:00Spring Family picnic was a success!We had 60 people in attendance. 10 full mutation. 8 carriers. And the rest were friends, family and support.<br />
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We relocated the activity to a local church house because of the rain. We couldn't do the horse ride so we brought in the rocking horses! It was still pretty fun for the younger ones.<br />
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We had a bean bag toss, coloring center, face painting, a bounce house, lunch and a treat.<br />
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It was great to socialize with everyone and not feel alone in our endeavors and challenges.<br />
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I hope we continue to get more and more people involved in our association. Pass the word around and let's continue to gain more attendance and more support.<br />
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Photos were done by <a href="http://www.galleryimagephotography.com/">Gallery Image Photography</a> the official photographers of the Fragile X Association of Utah<br />
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margin-right: 1em;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiW-2Qu7P16GPlij5AuIiLaW19YWeAx5cqYgpxAdQH_TrmF-XwRKwqGqp_Ur93_GqJJDbse_TMwEbXFRVvlkkErBDElLr67r1s88V2VY_POXDHyzor7Y9QG5pD8qVU3Lt8rVAZluL_Dmnf-/s400/DSC_0145_2.JPG" width="400" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnbfPpB02vDwDNjUhSAtrJb-APjSMaPOXkMDeHwcXXvbSaaijqbA-YcI_USFV6vOkT05IF9Ewa9g7ws0q0Q6zlOU_k_WCpRfaM6SSVWx-eLNtTeFLHtfhHGlQMlK3tbH89Mk5k-ohP7iur/s1600/DSC_0152.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnbfPpB02vDwDNjUhSAtrJb-APjSMaPOXkMDeHwcXXvbSaaijqbA-YcI_USFV6vOkT05IF9Ewa9g7ws0q0Q6zlOU_k_WCpRfaM6SSVWx-eLNtTeFLHtfhHGlQMlK3tbH89Mk5k-ohP7iur/s400/DSC_0152.JPG" width="400" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihFeRpdQDgFRdULb_F5Hfhhzk00y9ohSZN-Gk1VVuhvq9lZz0e4Sf3GFRqSxO1_6qwbZhimpujBZJXjKxuY1dZpxePvUcNrrAs2s1vIVtlm5LccJyDvSUGoUkLU3gueCOk6wNjNUct1_Qe/s1600/DSC_0190.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihFeRpdQDgFRdULb_F5Hfhhzk00y9ohSZN-Gk1VVuhvq9lZz0e4Sf3GFRqSxO1_6qwbZhimpujBZJXjKxuY1dZpxePvUcNrrAs2s1vIVtlm5LccJyDvSUGoUkLU3gueCOk6wNjNUct1_Qe/s400/DSC_0190.JPG" width="400" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNnJ6HEf-9w6AAEU3KYAdy7UBJFgQRU0dPJ7YsxuWsQctbihju7mIR_CF-cRxe5otI2Zvi9K7HTIhXmGOfQcrlVfwccOZ1-0W4Gzu15KRcR1UyykyM3ZjljXmdcr49zF3swUMZ1ng2bZk8/s1600/DSC_0194_2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNnJ6HEf-9w6AAEU3KYAdy7UBJFgQRU0dPJ7YsxuWsQctbihju7mIR_CF-cRxe5otI2Zvi9K7HTIhXmGOfQcrlVfwccOZ1-0W4Gzu15KRcR1UyykyM3ZjljXmdcr49zF3swUMZ1ng2bZk8/s400/DSC_0194_2.JPG" width="266" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOEnQ6EKac9wMBlhqEV8JbTKU7mmEmPYpVFTTpRMH0QEMaAbkcxXmYn45rlNeqS6OjVn4vWSGZx8BiKxaBcQhfrEbqEPoY0JBe5x6ueyi2eJODXBkIVjW644dVIfTJfFsGIXpPwaMdnZIz/s1600/DSC_0195.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="318" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOEnQ6EKac9wMBlhqEV8JbTKU7mmEmPYpVFTTpRMH0QEMaAbkcxXmYn45rlNeqS6OjVn4vWSGZx8BiKxaBcQhfrEbqEPoY0JBe5x6ueyi2eJODXBkIVjW644dVIfTJfFsGIXpPwaMdnZIz/s400/DSC_0195.JPG" width="400" /></a></div><div style="text-align: center;">One of our photographers gets in on the fun!</div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYf34HpgC5BtjLShsdJFd4rRmBAM6gdOKXZz8uO5XSEOYAi0PdF3C8BxwAcunUNvJ6IkIgnrjbffbc6SQpEsCTf4Cw30UEetjyRTqaRySy7SpMLxz-1HhXupwL-GZHveTaojSoR1A9AWNK/s1600/DSC_0227.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYf34HpgC5BtjLShsdJFd4rRmBAM6gdOKXZz8uO5XSEOYAi0PdF3C8BxwAcunUNvJ6IkIgnrjbffbc6SQpEsCTf4Cw30UEetjyRTqaRySy7SpMLxz-1HhXupwL-GZHveTaojSoR1A9AWNK/s400/DSC_0227.JPG" width="400" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjc0T1mHsmQ5KSdwuYsBsKGJF86rtd-4CXUN1RlSbNp_x1pHOgrNcrDAbxV66cnfaMU0CZLnUbdkPt6u2Y_Sy8TU6mOQ4jYxCLW6IBVaLfM6fLZqfB3KIZ-dc2klOz1e_sLkUfn7Nz5B43M/s1600/DSC_0242_2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjc0T1mHsmQ5KSdwuYsBsKGJF86rtd-4CXUN1RlSbNp_x1pHOgrNcrDAbxV66cnfaMU0CZLnUbdkPt6u2Y_Sy8TU6mOQ4jYxCLW6IBVaLfM6fLZqfB3KIZ-dc2klOz1e_sLkUfn7Nz5B43M/s400/DSC_0242_2.JPG" width="400" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCFtRXtCp6Gb0tDqJhhW3rQj_QAVsW9mLu0iWYQHLq64u4gkNPjS8f35Dn5tb2U7SRelQP05-Ip3fNSTH831TuxOzESGBlu_l4bALtit7PWfL106Nrkp0ATJlBkl7wypA81loQMsdSQgXT/s1600/DSC_0244.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCFtRXtCp6Gb0tDqJhhW3rQj_QAVsW9mLu0iWYQHLq64u4gkNPjS8f35Dn5tb2U7SRelQP05-Ip3fNSTH831TuxOzESGBlu_l4bALtit7PWfL106Nrkp0ATJlBkl7wypA81loQMsdSQgXT/s400/DSC_0244.JPG" width="341" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfvWXPz8vUC0pK_G5V8WtbtMskdc-ZT_-CQA3BinjrQ4XbB71eCku1okpV8cmE1vG1hv620b5SyEtLzIu8l6mGmqmdE1QkSwOpJQHGhmy1g3UO1YHNCQFGcQfSuAGk73Fx4PeugEbzn8ib/s1600/DSC_0130.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfvWXPz8vUC0pK_G5V8WtbtMskdc-ZT_-CQA3BinjrQ4XbB71eCku1okpV8cmE1vG1hv620b5SyEtLzIu8l6mGmqmdE1QkSwOpJQHGhmy1g3UO1YHNCQFGcQfSuAGk73Fx4PeugEbzn8ib/s400/DSC_0130.JPG" width="266" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-46332919942670107372010-06-07T10:38:00.000-07:002010-06-07T10:39:10.515-07:00Family Picnic Flyer<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiD5x8T2g_2f0rxMe6Aens4fy-dUcTGaPfHHtXisj6MQf3eHOZgcyxUhgfnH4hionW2NDZEHlB8srSdMLXxfu0HHCXEAtAxVlhgMxRZAKRXTfcS0CDmpGBH2ihZ2tOLBQ0mEjuBv6lnWdld/s1600/FXAU+picnic+blog.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiD5x8T2g_2f0rxMe6Aens4fy-dUcTGaPfHHtXisj6MQf3eHOZgcyxUhgfnH4hionW2NDZEHlB8srSdMLXxfu0HHCXEAtAxVlhgMxRZAKRXTfcS0CDmpGBH2ihZ2tOLBQ0mEjuBv6lnWdld/s400/FXAU+picnic+blog.jpg" width="330" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7592397840265527223.post-28213025368678720132010-06-01T22:01:00.000-07:002010-06-01T22:01:35.359-07:00WelcomeThis is just the beginning. I will do my best to keep this updated with what may be applicable to our association. I want us to feel linked together so that we can work together for our children, our grandchildren, our neices and nephews.<br />
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For this first post it will just be a space filler. I promise some more stuff will be here soon.Unknownnoreply@blogger.com0