We can always change our mind...

So, it has been decided that our benefit will no longer be the motorcycle ride that has been long anticipated. It just wasn't panning out, and frankly, it wasn't something I had a true interest in so we are looking at October for our Parade of Pumpkins.

You can donate to our cause at FirstGiving 

or

you can like us and check our Facebook Page

It's going to be a fun-filled weekend of pumpkins, face painting and prizes.

Think of it kind of like the Festival of Trees only done with Pumpkins at Halloween time...

October
Friday the 19th from 6 - 9pm
and
Saturday the 20th from 10am - 9pm
2012

at Noah's in Lindon

July 2011 Family Gathering

We had a great time in Orem at the Community Park. There was a playground close by for the kids and the large shaded pavilion helped ease the heat.

We had pizza, watermelon, drinks along with good conversation and great parenting ideas.

One of the great ideas shared was for those FXers who don't like just water because it doesn't have enough pizazz, just add MiO. I found it at my local Smith's store for a couple of dollars. It lasts a long time and gives a punch of flavor.

Another great idea was about brushing. One mom found that a cat brush that your find at the pet store works great and is inexpensive. If you don't know what brushing is check here.

We also had brand new members join us at the picnic. 

It was so great to meet some new people! Woo hoo!

It was so wonderful to have a gathering of parents, children affected by FXS and children not affected by FXS, and carriers of FXS. I am excited for our next event.

Maybe a fundraiser?

...

Advocacy Day 2011

The FXAU was represented well in Washington this year with 4 people from our group. We sent two mothers, one father and one grandfather.

Here are a few pictures of their experience.

We hope to get more of you involved next year. It is an awesome experience and very rewarding!

If you are interested please leave a comment or send me and email.

Article in the Local Newspaper

Check out this family from Utah County!

Utah Family Makes Cover of the National Fragile X Quarterly

Exciting to have Utah representing families of Fragile X Syndrome

Click here if you would like to receive The National Fragile X Foundation Quarterly.

Ride for Fragile X

This is a motorcycle benefit ride that my friends are putting on. 

I will put up more information for dates and such as I receive them.

Check out the website where donations are being accepted 

and pass this site on to all of your family and friends.

You will find the link to donate at TJD Customs

Aquarium Family Activity

We had so much fun at the activity that the Mills planned for our association in  August! We went to the aquarium and gathered in one of the party rooms for the first hour and a half for learning and socializing, and, of course, eating! Mmm! Then we all went on a treasure hunt around the aquarium and then we got to have our free time to look at everything.

It was great to meet 2 new families who have just received or are awaiting diagnosis. We had a good turnout (we would still like to see more of you).

I didn't get too many pictures without my kids in there so I found some of a few of the many things we saw at the aquarium.

 Penguins

 Fish (of course)

Poisonous frogs

(don't worry, no one got hurt while taking this picture...)

Yes, that's my kid but the background was so cute I thought I should show you the place for a good photo op. (smile)

We even got to go to a show and see birds, insects and a huge snake!

There was also an octopus, jelly fish, starfish, sting rays, sharks, a sea turtle, sea horses, and all kinds of awesome fish!

If you have any pictures you would like to share email me or leave a comment so I can contact you and put the picture on our blog...